Top 10 Steve Gleason Quotes

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Typing with your fingers or thumbs is sooooo 2012. I tweeted that earlier in the year. I type with my eyes. Not only that, I navigate my computer, create and play music, keep a calendar, conference call, lead web X meetings, text and, obviously, tweet with my eyes.

I have been diagnosed with Amyotrophic Lateral Sclerosis (ALS). It's a terminal disease with an average lifespan of two to five years post-diagnosis, and scientists don't know what causes it. ALS prevents your brain from talking to your muscles. As a result, muscles die. As a result, every 90 minutes people die. I am a person.

ALS does not affect cognitive process. Stephen Hawking, one of smartest people on the planet, has ALS. It rarely affects the eyes. It doesn't affect senses like hearing, taste and touch.

The film 'The Diving Bell and the Butterfly,' based the book of the same name, has a line that enlightens and comforts me. The protagonist, who has lost all ability to move except one eye, discusses his role as a father. He notes, 'Even a fraction of a father is still a father.'

A terminal diagnosis can really mess with your head. Honestly, it makes you want to run away to the moon. Many ALS patients want to fade away quietly. This was not for me.

Because ALS is underfunded, patients have had no option but to fade away and die. That is not OK.

I believe happiness is a choice. Some days it is a very difficult choice.

I look at the human life like an experiment. Every new moment, every new experience, tragic or otherwise, is an opportunity to gain a more accurate perspective and helps lead me to clarity.

I have moments where I miss my old self. But I think anyone can get caught up in what we used to have. But at the same time, we can choose to focus on the beauty of now.

Life is difficult. Not just for me or other ALS patients. Life is difficult for everyone. Finding ways to make life meaningful and purposeful and rewarding, doing the activities that you love and spending time with the people that you love - I think that's the meaning of this human experience.

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