Susannah Cahalan Quotes
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I believed that I could age people with my mind. If I looked at them, wrinkles would form, and if I looked away, they would suddenly, magically get younger.
I had to bring the idea of journalistic distance to writing about myself.
If an autoimmune disease can create symptoms that look exactly like schizophrenia, that raises the question, what is schizophrenia? And are there forms of schizophrenia that are caused by other types of autoimmune disease?
We separate problems with the brain into neurological and psychiatric, and it's because it's stigmatised still. Mental illness is still stigmatised. Imagine if we treated people with cancer like that. Just because your personality changes and your behaviour changes, all of a sudden you are put in a different category.
Some people say how they'd like to live in different eras. Not me.
NMDA receptors are concentrated in the areas that control learning and memory, higher functions like multitasking, and some of the more subtle aspects of personality. When the immune system makes antibodies that attack these receptors, people may have seizures and violent fits.
The first neurologist I saw just thought I was partying too much, and he stuck by that claim even after my family insisted that he was wrong.
I knew something was wrong; I was constantly tired, and I'd developed numbness on my left side. I'd also become paranoid that my boyfriend was cheating on me. I thought I was having a nervous breakdown. One psychiatrist told me I was bipolar.
The true story of how my husband, Stephen, and I exchanged our first 'I love you's' - chronicled in my 2012 memoir 'Brain on Fire' - occurred deep in a hallucinatory psychotic episode outside a crowded Maplewood, NJ, restaurant.
When my disease nearly destroyed me in 2009, my doctors thought I'd be lucky to regain 80 percent of my cognitive abilities. When I was at my sickest, I couldn't read or write. I could barely walk on my own or groom myself. The disease felled me physically and mentally - robbing me, briefly but intensely, of my wits, my sanity, my memory, my self.
I shouldn't have been diagnosed as swiftly as I had been. I shouldn't have recovered as fully as I did. I shouldn't have been able to write a book that did as well as it did, and that book should never have been made into a movie. Yet, here I am.
When 'Brain on Fire' premiered at the Toronto Film Festival in 2016, I fixated on inconsequential things like what dress I would wear and how much weight I wanted to lose. I lost my perspective.
My diagnosis had been discussed in almost every major medical journal, including the 'New England Journal of Medicine,' and 'The New York Times.'
To see my story turned into a movie is mind-blowing.
I never imagined while going through this horrifying illness that I would write a book or that it could ever be a movie.
To hear the words 'autoimmune encephalitis' in a movie is amazing to me, and I'm so proud.
My own medical history during my hospital stay was readily available to me through literally thousands of pages of medical records that outlined everything from my 'bowel releasing' schedule to the minute details of my brain biopsy procedure.
The brain is the black box: the final frontier.
Be your own advocate.
For me, I think that there's a lot missing from the recovery or the post-diagnosis side of treating patients. Once the diagnosis is made, I feel that care drops off tremendously, even though it is precisely the time that a patient needs help the most, even if they are not verbalizing it.
Before I was a reporter, I worked at a record store in New Jersey.
I heart Scott Baio.
When you want to write well, wake up at 5 A.M.
In the world of online invitations, nothing is sacred. People will invite all 500 of their 'closest' friends to their birthday party - and 485 of those people will RSVP 'yes' without intending to show up.
I think people need to be comfortable questioning the authority of a doctor.
It's hard for me to hear about the things that I believed during my madness.
I was the first person in NYU Medical Center's history to be diagnosed with NMDAR encephalitis.
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